Living the decision

the long version

When Phillip Bennett was 10 years old, he was diagnosed with a degenerative neuromuscular disorder called Friedreich's Ataxia (FA). Unexpectedly, his life was thrust onto an entirely different and considerably shorter path than the one he thought and hoped he'd travel. In Living the Decision, Phillip shares how, with help of family and friends, he coped and sometimes thrived while enduring the degenerating effects of FA. Writing with his signature dry wit, Phillip recounts his journey; a journey jammed with love and laughter, joy and pain, struggle and grace.